Sent this to the SIL in a text. Decided I couldn’t explain it any better. So I’m copying and pasting.
So, we went to see the neurologist last week. I figured we would discuss the MRI. Weirdly she insisted on aggressively asking us the same whole battery of questions she asked 3 weeks ago. Also, she told us THREE times that “they don’t usually schedule appointments during this time and she wasn’t prepared” which could not have been more obvious. Also, she didn’t seem to remember us which is super strange since people tend to remember the 6’7” person. He’s not really forgettable and it had only been 3 weeks.
She said that all the changes I observe/report can be explained by the condition of his brain and that he needs to take better care of himself to possibly slow the progression. The shrinkage of his brain is in the highest category for what is typically seen for his age, (so, she is not quite convinced there is anything to diagnose there) as is the extra fluid that fills the space where the brain used to be. He will take none of her recommendations. He will not try to get aerobic exercise, he will not follow a Mediterranean diet, wear his CPAP device or socialize as much as possible. (He doesn’t have any real friends, so not quite an option for him) So, he’ll just continue to slowly waste away. So much fun for meeeee!
She had not compared the new MRI to the MRI from 5 years ago (seriously??) However, 5 years ago doctors told me there was atrophy in certain regions, so I’m guessing this is at least a little bit worse since she stated it was all over and not contained to certain regions. She got a bit frustrated when I asked if certain regions were more affected than others, and totally skirted my question, but like I said, frustrated is her overall demeanor.
She wants him to have a neurophysiological evaluation and that couldn’t be scheduled before April. So, it’ll be quiet around here until April. Barring any emergency doctor visits, I’m probably only going to take him to see his eye doctor in between to salvage what little amount of vision he still has. Last time we were there the eye doctor informed us that technically he is legally blind and would be eligible for state services if he needs rides to appointments etc… (Like I could send him off alone! He doesn’t understand a word they say) Maybe I’ll have to take him to have some blood tests run because his kidneys are teetering on the edge.
That’s all I got. It was pretty much a waste of time. I do not like this doctor at all. She can barely communicate. She is so agitated that I am agitated when we walk out. I’m shocked they hired her. That is so unlike any of the other doctors I’ve met there. Seems like the neurology department might be Y@le’s weakest link. Lots of bad reviews on line.
Anyways, that’s all I got for now. Stay safe. Hope everyone on your end is healthy.
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